Useful links & addresses
Here is a list of useful links to websites that are connected to Progeria:
Organizations and Foundations:
- Progeria Family Circle (old)
- Progeria Family Circle (new)
- Sunshine Foundation
- Progeria Research Foundation
- Family Village
- Europrogeria
Personal websites of kids/families with Progeria:
- Zoey (Verona / New Jersey)
- Zach (Kentucky /USA)
- Cameron (Michigan /USA)
- Kristian (passed away)
- Ory (passed away)
- Hayley (United Kingdom)
- Lori en Ashley (Canada)
- Heather and Ory (USA)
- Lindsay (USA)
- Bjorn (The Netherlands)
- Kaylee (Ohio / USA)
Doctors:
- Germany
-
Dr. Thomas Brune
Universitätskinderklinik Magdeburg, Wienerstr., 39112 Magdeburg
++(0)391/6717006
Thomas.Brune@medizin.uni-magdeburg.de -
Dr. Thorsten Marquardt
Universitätskinderklinik Albert-Schweitzer-Str. 33, 48149 Münster
Tel: 0251 / 835-8519
marquat@uni-muenster.de
Progerie-Website : http://cdg.uni-muenster.de/Progeria.html - The Netherlands
-
Dr. Raoul Hennekam
Department of Pediatrics and Department of Clinical Genetics,
Academisch Medisch Centrum, Meibergdreef 9/ postbus 22660, 1100 DD Amsterdam
r.c.hennekam@amc.uva.nl
-
Dr. Heval Ozgen
Emma Kinderziekenhuis/AMC Postbus 22660, 1100 DD Amsterdam NL
+31 (0) 20-5662654
m.h.ozgen@amc.uva.nl
- Belgium
-
Dr. Martine Biervliet
Universitair Ziekenhuis Antwerpen, Centrum Medische Genetica, Wilrijkstraat 10, 2650 Edegem
martine.biervliet@ua.ac.be
- Turkey :
-
Nursel ELÇIOGLU, M.D.
Professor of Pediatrics & Clinical Genetics
Division of Genetic Disorders
Marmara University Hospital
Department of Pediatric Genetics
Tophanelioglu Cad. 15
34660 Altunizade – Istanbul – Turkey
Tel. : +90 532 671 37 62
Fax : +90 216 478 32 41
nelcioglu@gmx.de