LIVRE D’OR
Bienvenue sur notre Livre d’Or, où vous pouvez nous laisser un message si vous le désirez. Ce serait super sympa. Peut-être à très bientôt.
Grand merci à vous tous pour votre soutien indéfectible et pour toutes vos réactions positives!
Michiel et Amber
C’est bien vrai. Tu étais dans le ventre de Maman.
Nous ne l’oublierons jamais.
Tu étais alors encore si petit…
Nous ne savions pas que Michiel était un garçon, mais bien qu’Amber était une fille.
Lorsque tu es né, nous nous sentions si comblés
et nous étions si heureux de ta venue.
Que tu nous aies choisis comme parents
est la plus belle chose qui nous soit arrivée
De t’aimer et de t’accompagner tout au long de ta vie
est la plus belle tâche qui nous ait été confiée.
Tu es né enfant Progeria
et même si tu es très différent, tu feras partie de nous pour toujours et à jamais.
I watched the program on TV about Haley and was touched by your family. You are a beautiful, loving family and I admire your strength. All you can do is take one day at a time and appreciate the little, wonderful moments and keep hope alive.
I watched the program on TV about Haley and was touched by your family. You are a beautiful, loving family and I admire your strength. All you can do is take one day at a time and appreciate the little, wonderful moments and keep hope alive.
To Amber and Michiel- you are beautiful children and are so lucky to have such nice mammy’s and daddy’s. You are amazing and very inspiring, and everyone cheers for you! To Godelieve and Wim- You are wonderful parents who are strong and so loving and caring. No one can feel how hard this must be for you. But try to keep smiling, for God is smiling down at you. My prayers go out to your family.
Dear Godelief, Wim, Michiel and Amber, all of you will be in my heart and prayers. May the treatments here in the USA give you the hope you so desperately need. Being a parent, I can only imagine how hard this must be for you. God bless you, Dorrit
I watched your story, along with Hayley’s. Thank you for telling your story. As A nurse, I know some about progeria, but have neve encountered a child with it. I want to say that you have 2 angels on earth. You were given this children as a special gift from God. I pray that a cure is found soon. I will keep both Michiel and Amber in my prayers.
I watched your story along with Okines family. I was truly inspired by your family strength. I hope that all works with the experimental drugs. May God bless you all. I will be praying for all of you.
I watched your story and it touch my heart. I admire the courage and your strenth as parents. when god place the both of you together, you made beautiful angels and give you a mission to help childern all over the world that has this disease. My god bless your beautiful family
Howdy from Dallas, Texas! I watched your story last night and was so very moved. God bless you and keep you. I will pray for you every day that the trials come back and there is a cure so you can grow to be a healthy boy and girl! love and kisses! DM
Hello, from Orlando, Florida. I saw the television documentary about your family and the Okine family, and then I found your website and saw what remarkable and wonderful parents you are. I so admire you and your precious children, and I wish all the best for them and you. The documentary said the last treatment in Boston is May 2009, which is just around the corner. I will keep my fingers crossed and pray for your family and all the other children with Progeria.
Thank you for sharing your beautiful family with my family.You have been blessed with two beautiful children.Your children have been blessed with extraordinary parents.Your story has touched my heart and changed the way that I look at life.My 26 year old daughter is a neuroblastoma survivor,thanks to expeimental treatment.My positive thoughts are with you and your remarkable family…thank you