GASTENBOEK
Welkom in ons gastenboek en als je wilt, kun je een berichtje achterlaten. Wij zouden dat heel fijn vinden en misschien kom je wel een keertje terug.
Wij danken iedereen voor de geweldige steun en alle positieve reacties !!
Liefste Michiel & Amber,
Het is echt waar. Jij hebt in mama’s buik gezeten.
Wij zullen dat nooit vergeten.
Jij was toen nog zo klein.
Wij wisten niet dat Michiel een jongen maar wel dat Amber een meisje zou zijn.
Toen je dan geboren was voelden wij ons zo rijk
en wij werden door jouw komst enorm verblijd.
Dat jij ons als jouw mama en papa hebt uitverkozen
is het mooiste wat ons ooit kon overkomen.
Ons werd de mooie taak gegeven
om van je te houden en je te begeleiden in je leven.
Als progeriakind ben je geboren
en ook al ben je anders, je zult immer en altijd bij ons horen.
I watched the program on TV about Haley and was touched by your family. You are a beautiful, loving family and I admire your strength. All you can do is take one day at a time and appreciate the little, wonderful moments and keep hope alive.
I watched the program on TV about Haley and was touched by your family. You are a beautiful, loving family and I admire your strength. All you can do is take one day at a time and appreciate the little, wonderful moments and keep hope alive.
To Amber and Michiel- you are beautiful children and are so lucky to have such nice mammy’s and daddy’s. You are amazing and very inspiring, and everyone cheers for you! To Godelieve and Wim- You are wonderful parents who are strong and so loving and caring. No one can feel how hard this must be for you. But try to keep smiling, for God is smiling down at you. My prayers go out to your family.
Dear Godelief, Wim, Michiel and Amber, all of you will be in my heart and prayers. May the treatments here in the USA give you the hope you so desperately need. Being a parent, I can only imagine how hard this must be for you. God bless you, Dorrit
I watched your story, along with Hayley’s. Thank you for telling your story. As A nurse, I know some about progeria, but have neve encountered a child with it. I want to say that you have 2 angels on earth. You were given this children as a special gift from God. I pray that a cure is found soon. I will keep both Michiel and Amber in my prayers.
I watched your story along with Okines family. I was truly inspired by your family strength. I hope that all works with the experimental drugs. May God bless you all. I will be praying for all of you.
I watched your story and it touch my heart. I admire the courage and your strenth as parents. when god place the both of you together, you made beautiful angels and give you a mission to help childern all over the world that has this disease. My god bless your beautiful family
Howdy from Dallas, Texas! I watched your story last night and was so very moved. God bless you and keep you. I will pray for you every day that the trials come back and there is a cure so you can grow to be a healthy boy and girl! love and kisses! DM
Hello, from Orlando, Florida. I saw the television documentary about your family and the Okine family, and then I found your website and saw what remarkable and wonderful parents you are. I so admire you and your precious children, and I wish all the best for them and you. The documentary said the last treatment in Boston is May 2009, which is just around the corner. I will keep my fingers crossed and pray for your family and all the other children with Progeria.
Thank you for sharing your beautiful family with my family.You have been blessed with two beautiful children.Your children have been blessed with extraordinary parents.Your story has touched my heart and changed the way that I look at life.My 26 year old daughter is a neuroblastoma survivor,thanks to expeimental treatment.My positive thoughts are with you and your remarkable family…thank you