LIVRE D’OR
Bienvenue sur notre Livre d’Or, où vous pouvez nous laisser un message si vous le désirez. Ce serait super sympa. Peut-être à très bientôt.
Grand merci à vous tous pour votre soutien indéfectible et pour toutes vos réactions positives!
Michiel et Amber
C’est bien vrai. Tu étais dans le ventre de Maman.
Nous ne l’oublierons jamais.
Tu étais alors encore si petit…
Nous ne savions pas que Michiel était un garçon, mais bien qu’Amber était une fille.
Lorsque tu es né, nous nous sentions si comblés
et nous étions si heureux de ta venue.
Que tu nous aies choisis comme parents
est la plus belle chose qui nous soit arrivée
De t’aimer et de t’accompagner tout au long de ta vie
est la plus belle tâche qui nous ait été confiée.
Tu es né enfant Progeria
et même si tu es très différent, tu feras partie de nous pour toujours et à jamais.
I hope you the best. STAY STRONG ALWAYS! You are wonderful parents and keep it going! god bless you! Tell them, you’re not alone! It will be over soon!
Hello! My daughter also has a rare genetic disorder (Fibrosyplasia ossificans progressiva – FOP- happens in one in two million births). Even within our FOP community across the world, there are no known cases of parents having more than one child with FOP. We too are waiting for clinic trials to help with FOP symptoms. You have an amazing family and are in our prayers.
You are both awesome, loving parents! You have two beautiful children and I pray that God will bless and comfort your family each day. Thank you for sharing your story. I just saw the TLC documentary on Haley and was touched by everyone’s story. Your family helps to soften hearts everyday. Your children are so precious.
Hey! I saw the program today with you guys and Hayley and I wanted to let you know that you are truly and inspiration to me. My cousin Sam has progeria as well and it’s not easy. Just keep smiling, Sarah
I saw a program about Hayley tonight that you were on and it touched my heart so much! I am a teenager and always wanted to go into a field where i can help people with different rare conditions. I now have a desire to learn more about progeria and work with children with it. Thank you for you strength. It is so encouraging to see you loving your children and getting through this as a family. May God richly bless all of you! ~Veronica
My heart broke to hear that your second has progeria. I hope with the available prenatal testing, you are not discouraged to try for a 3rd.
You 2 are amazing kids! I wish you both the best! And to know people think and pray for you always~
You are two beautiful children. Your parents words in the poems they wrote for you, truly show that they love you both so much. I hope you continue to enjoy all the things you love to do. I will pray for your family. Keep on smiling. God is looking down and smiling right back.
You are two beautiful children. Your parents words in the poems they wrote for you, truly show that they love you both so much. I hope you continue to enjoy all the things you love to do. I will pray for your family. Keep on smiling. God is looking down and smiling right back.
You are two beautiful children. Your parents words in the poems they wrote for you, truly show that they love you both so much. I hope you continue to enjoy all the thing you love to do. I will pray for your family. Keep on smiling. God is looking down and smiling right back.