GASTENBOEK
Welkom in ons gastenboek en als je wilt, kun je een berichtje achterlaten. Wij zouden dat heel fijn vinden en misschien kom je wel een keertje terug.
Wij danken iedereen voor de geweldige steun en alle positieve reacties !!
Liefste Michiel & Amber,
Het is echt waar. Jij hebt in mama’s buik gezeten.
Wij zullen dat nooit vergeten.
Jij was toen nog zo klein.
Wij wisten niet dat Michiel een jongen maar wel dat Amber een meisje zou zijn.
Toen je dan geboren was voelden wij ons zo rijk
en wij werden door jouw komst enorm verblijd.
Dat jij ons als jouw mama en papa hebt uitverkozen
is het mooiste wat ons ooit kon overkomen.
Ons werd de mooie taak gegeven
om van je te houden en je te begeleiden in je leven.
Als progeriakind ben je geboren
en ook al ben je anders, je zult immer en altijd bij ons horen.
I hope you the best. STAY STRONG ALWAYS! You are wonderful parents and keep it going! god bless you! Tell them, you’re not alone! It will be over soon!
Hello! My daughter also has a rare genetic disorder (Fibrosyplasia ossificans progressiva – FOP- happens in one in two million births). Even within our FOP community across the world, there are no known cases of parents having more than one child with FOP. We too are waiting for clinic trials to help with FOP symptoms. You have an amazing family and are in our prayers.
You are both awesome, loving parents! You have two beautiful children and I pray that God will bless and comfort your family each day. Thank you for sharing your story. I just saw the TLC documentary on Haley and was touched by everyone’s story. Your family helps to soften hearts everyday. Your children are so precious.
Hey! I saw the program today with you guys and Hayley and I wanted to let you know that you are truly and inspiration to me. My cousin Sam has progeria as well and it’s not easy. Just keep smiling, Sarah
I saw a program about Hayley tonight that you were on and it touched my heart so much! I am a teenager and always wanted to go into a field where i can help people with different rare conditions. I now have a desire to learn more about progeria and work with children with it. Thank you for you strength. It is so encouraging to see you loving your children and getting through this as a family. May God richly bless all of you! ~Veronica
My heart broke to hear that your second has progeria. I hope with the available prenatal testing, you are not discouraged to try for a 3rd.
You 2 are amazing kids! I wish you both the best! And to know people think and pray for you always~
You are two beautiful children. Your parents words in the poems they wrote for you, truly show that they love you both so much. I hope you continue to enjoy all the things you love to do. I will pray for your family. Keep on smiling. God is looking down and smiling right back.
You are two beautiful children. Your parents words in the poems they wrote for you, truly show that they love you both so much. I hope you continue to enjoy all the things you love to do. I will pray for your family. Keep on smiling. God is looking down and smiling right back.
You are two beautiful children. Your parents words in the poems they wrote for you, truly show that they love you both so much. I hope you continue to enjoy all the thing you love to do. I will pray for your family. Keep on smiling. God is looking down and smiling right back.