LIVRE D’OR
Bienvenue sur notre Livre d’Or, où vous pouvez nous laisser un message si vous le désirez. Ce serait super sympa. Peut-être à très bientôt.
Grand merci à vous tous pour votre soutien indéfectible et pour toutes vos réactions positives!
Michiel et Amber
C’est bien vrai. Tu étais dans le ventre de Maman.
Nous ne l’oublierons jamais.
Tu étais alors encore si petit…
Nous ne savions pas que Michiel était un garçon, mais bien qu’Amber était une fille.
Lorsque tu es né, nous nous sentions si comblés
et nous étions si heureux de ta venue.
Que tu nous aies choisis comme parents
est la plus belle chose qui nous soit arrivée
De t’aimer et de t’accompagner tout au long de ta vie
est la plus belle tâche qui nous ait été confiée.
Tu es né enfant Progeria
et même si tu es très différent, tu feras partie de nous pour toujours et à jamais.
Thank you, thank you, thank you!!!! Thank you for sharing your lives with the world. I saw a program on the Discovery Health Channel in Columbia, South Carolina (United States). I had no knowledge of this disease. Thank you for the awareness. I cried when I saw all of those children. I felt so bad for them and wanted to reach out to all of them. However, they are so cute and appeared to be so sweet!!! I pray that I can meet them one day….My five year old son has been diagnosed with Autism, so I understand the challenges of caring for a child with a disability. Many times I have asked why God would give me a child like this but then I remember the bible text that says God wouldn’t give us more than we can bear. I pray that God continues to give you the strength to go forward. You all will be in my prayers………
Our family was touched by your story. Your children are precious and beautiful. We will pray that these treatments can help Michiel and Amber live longer and stronger lives. God Bless
your children touched me very deeply. I pray that a cure is found. They are so beautiful.
You have beautiful children. I saw their story on T.V in Canada Last night. Your story was very touching. I have your children in my thoughts and prayers. Dawn & Lindsey Martin
I just wanted to let you know I am praying for your family and that this treatment will help you both!
I just wanted to let you know I am praying for your family and that this treatment will help you both!
I saw your family while watching Haley’s Hope on TLC this evening and was deeply touched by your family’s positive attitude. I send my prayer’s and good thoughts your way. May God continue to keep and strengthen your family. P.S. I would love to hear if Michiel was helped by the new treatment.
I am a new mother of a great baby girl, and my heart reaches out to you and your two lovely children. They are so precious and all of you are so courageous. I wish you all the best and lots of hugs and kisses. Elspeth
I am so awed by your beautiful children. I just learned about the new treatment for Progeria when your story aired here in the United States. Let this be the cure!
I just saw you both on TLC here in Seattle WA. I just wanted to say you are an amazing family and my best wishes and prayer are going your way.