LIVRE D’OR
Bienvenue sur notre Livre d’Or, où vous pouvez nous laisser un message si vous le désirez. Ce serait super sympa. Peut-être à très bientôt.
Grand merci à vous tous pour votre soutien indéfectible et pour toutes vos réactions positives!
Michiel et Amber
C’est bien vrai. Tu étais dans le ventre de Maman.
Nous ne l’oublierons jamais.
Tu étais alors encore si petit…
Nous ne savions pas que Michiel était un garçon, mais bien qu’Amber était une fille.
Lorsque tu es né, nous nous sentions si comblés
et nous étions si heureux de ta venue.
Que tu nous aies choisis comme parents
est la plus belle chose qui nous soit arrivée
De t’aimer et de t’accompagner tout au long de ta vie
est la plus belle tâche qui nous ait été confiée.
Tu es né enfant Progeria
et même si tu es très différent, tu feras partie de nous pour toujours et à jamais.
God Bless your beautiful children, I pray for a cure. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal Cor 4:18
I saw your beautiful children on a TV special on TLC here in the U.S. It was about Hayley, but your children were also on the show. I’ve always read all I could about progeria, as I always hope that a cure will be found. I was encouraged to hear about the Boston drug trials. I hope that has been going well for your dear children. My hopes and prayers are with you and with the children. Thank you for sharing your story. With love, Cindy
Hallo lieve mensen, Ik heb laast een documentaire gezien bij ons op een nederlandse zender. JUllie gingen toen op bezoek bij een meisje in Engeland. IK wist al van deze ziekte af, maar goed als je dan zo ziet hoe het allemaal gaat etc. Dan is dat toch wel heel erg hard. Hoe gaat het met het Engelse meisje. De docu stopte toen jullie naar Amerika gingen voor de hoopvolle behandeling. Heel veel goeds voor de komende jaren met jullie mooie speciale kids. Liefs vanuit Holland. Hanneke
i am so amazed at your son Michiels story. i love how he is so full of joy. God bless your family and your children. you have definitely opened my eyes to something bigger than one person can handle. i beleive that you and your husband are very strong people. i am truly moved by your kids! you and your husband are the true heros in life.
Thank you for a beautiful yet sad (in many ways) story on this website. Yours and ook Hayleys story have touched many around the werld. Michiel een Amber, jullie zijn sterren! Groetjes Kay.
Hello my name is Ana and I live At Hill Air Force Base Utah. I would just like to tell you that I say you on TlC today and you are amazing children. My prayers and thought are with you.
You are in my prayers and thoughts every day. I hope god blesses your beautiful children with a chance to live long lives and that you are given the strength to handle whatever happens. Your story touches my heart.
I think you should get a caring bridge. they are for people and kids with an illness like cancer. My friend ^^Natalie^^(may she rest in peace) has one. Also you should join colesfoundation.com http://www.colesfoundation.com C.O.L.E. Prayer Team P.S. keep going never give up we will find a cure!
God has blessed you both with beautiful and caring children, I hope that new medical developments will allow them to live long and happy lives. The children and you both are in my prayers, may God give you the strength to get through the difficult days, but also many days of love and laughter as typical days of a family. Your children are so blessed to have such loving and wonderful parents.
Hello! I hope both of your children are doing well and that there is a treatment out there for them. My heart reaches out to you all!