LIVRE D’OR
Bienvenue sur notre Livre d’Or, où vous pouvez nous laisser un message si vous le désirez. Ce serait super sympa. Peut-être à très bientôt.
Grand merci à vous tous pour votre soutien indéfectible et pour toutes vos réactions positives!
Michiel et Amber
C’est bien vrai. Tu étais dans le ventre de Maman.
Nous ne l’oublierons jamais.
Tu étais alors encore si petit…
Nous ne savions pas que Michiel était un garçon, mais bien qu’Amber était une fille.
Lorsque tu es né, nous nous sentions si comblés
et nous étions si heureux de ta venue.
Que tu nous aies choisis comme parents
est la plus belle chose qui nous soit arrivée
De t’aimer et de t’accompagner tout au long de ta vie
est la plus belle tâche qui nous ait été confiée.
Tu es né enfant Progeria
et même si tu es très différent, tu feras partie de nous pour toujours et à jamais.
Gisternavond zag ik jullie verhaal op TLC hier in de Verenigde Staten, en het was vreemd dat ik niet eerder over jullie gehoord had! Het spijt me wat jullie als kinderen en ouders moeten meemaken, en ik hoop dat de behandeling succesvol zal zijn! Michiel en Amber, jullie zijn zo’n mooie kinderen en zo moedig! Jullie zijn een inspiratie! Veel liefs en een dikke knuffel voor jullie beiden en je mama en papa!
I had tears in my eyes throughout your whole story, both children I was mad that odds could be like that. I send love and prayers your way. Stay strong always
I had tears in my eyes throughout your whole story, both children I was mad that odds could be like that. I send love and prayers your way. Stay strong always
omg this site is cool its in a diff lang! i saw u guys on tv last night u guys r awsome! <3 mikenze chicago il ps idk wat to click on lol
I saw you on TLC last night and wanted to tell you that I will pray for you. I was so inspired by your story that I made a donation on the Progeria Research website. Be strong…the trial will work. Thank you for sharing your story, and remember that there are millions of people all over the world that are praying for you! love, ruth edri
Just wanted to check on little Michiel and Amber. All the way in Texas…I saw both of your beautiful kiddos on tv and it touched my heart. And what beautiful kids they are…God Bless all four of you.
Hi guys! I was watching TLC last night all the way in Canada and saw both of your speical stories! It made me so proud to know that there are still amazing and courageous people left in this world. I am downloading the volunteer information package now from the progeria website in hopes of helping and meeting people like you, who although are living with a life-altering disease, continue to live life with a positive attitude. xo
i saw michiel and ambers stories on television tonight for the first time. i remain awestruck at their courage and their beauty. it is people like michiel and amber who give hope to the rest of the world. i hope one day to be able to meet them and shake their hands and to tell them what an inspiration they have been to me. With Love, Julia (USA)
i saw michiel and ambers stories on television tonight for the first time. i remain awestruck at their courage and their beauty. it is people like michiel and amber who give hope to the rest of the world. i hope one day to be able to meet them and shake their hands and to tell them what an inspiration they have been to me. With Love, Julia (USA)
Good luck with the treatments. Love them every day. Children the most precious commodity of this world.