LIVRE D’OR
Bienvenue sur notre Livre d’Or, où vous pouvez nous laisser un message si vous le désirez. Ce serait super sympa. Peut-être à très bientôt.
Grand merci à vous tous pour votre soutien indéfectible et pour toutes vos réactions positives!
Michiel et Amber
C’est bien vrai. Tu étais dans le ventre de Maman.
Nous ne l’oublierons jamais.
Tu étais alors encore si petit…
Nous ne savions pas que Michiel était un garçon, mais bien qu’Amber était une fille.
Lorsque tu es né, nous nous sentions si comblés
et nous étions si heureux de ta venue.
Que tu nous aies choisis comme parents
est la plus belle chose qui nous soit arrivée
De t’aimer et de t’accompagner tout au long de ta vie
est la plus belle tâche qui nous ait été confiée.
Tu es né enfant Progeria
et même si tu es très différent, tu feras partie de nous pour toujours et à jamais.
thanks for sharing your story. Michiel and Amber are angels. Being a mother i can imagine how you feel. We have also gone thro all these pain, agony and fear that u are going thro now. We have lost our son Arka (means sun in INDIA) two months ago (25th Jan 2008). He died of a rare neurological disorder (the type and cause of the disease still remains undiagnosed and are under investigation). Life had stopped for us ever since he died. Still can’t believe. But then we continue to live…may be Arka is giving us the strength to live each day……
Thanks for sharing your story with all of us. I was not aware that it could be inherited…I can’t even begin to imagine your pain. I admire your strenght as a family. Love and cherish each other…for memories last longer than anything else. Many, many blessings to all of you. Big kisses for the kids!
Thank you for letting me meet your children. They are so precious. We never know why God chooses some of us to parent special children, but in spite of the pain I\\\\\\\’m glad he does. If he didn\\\\\\\’t, we\\\\\\\’d never get to know such wonderful children. My daughter had Cystic Fibrosis and went to God 25 years ago this month. While I would have loved to have her around forever, I am so grateful for the time I did have. Special kids leave special tracks in our hearts. God bless you and your family. You will be in my prayers.
Thank you for letting me meet your children. They are so precious. We never know why God chooses some of us to parent special children, but in spite of the pain I’m glad he does. If he didn’t, we’d never get to know such wonderful children. My daughter had Cystic Fibrosis and went to God 25 years ago this month. While I would have loved to have her around forever, I am so grateful for the time I did have. Special kids leave special tracks in our hearts. God bless you and your family. You will be in my prayers.
Thank you for sharing Michael\’s and Amber\’s stories. My daughter, Christina, passed away 3-16-05 with a congential heart defect. It was a rare defect and she needed a heart and lung transplant to survive. Even though the disease isn\’t the same – the pain of losing a child is. (I can\’t imagine losing two.) Please know that you and your family are in my thoughts and prayers and may you feel his warmth and love all around you.
To Michiel, Amber, & Family: Life brings many treasures to each of us and I know that God brought you together…We never know exactly what God has planned for our lives…But through Faith we understand that he knows what’s best! I wish you and all of the children that suffers with progeria many Blessings and that God instills a cure into researchers. I know that through God All Things Are Possible. Many Blessings, Katina Simmons
What beautiful children! My heart goes out to you all. Know that you are in the thoughts of many … throughout the world. Angie (Atlanta, Georgia, USA)
What an amazingly beautiful family. Michiel and Amber are so sweet and precious. God bless both of them, and God bless you as their parents. The courage and love that all of you display is inspirational to say the least. You are all in my thoughts and prayers.
I was so touched by your website, I can’t remember how I stumbled upon it. You both are amazing parents with such compassion and strength. After reading your story I was humbled and reminded how precious and temporary life is. Your an inspiration! All the best to you and your husband and of course to Michiel and Amber.
I came across the article on Foxnews that sent to me the Progeria website there I found your story. I just finished reading the Lifestory on both Micheil and Amber what a blessing they seem to be. I will pray that one day they will find a cure. Do as we all should do love them like there is no tomorrow.